saving grace

A Family Journal of Hurler Syndrome

Saturday, July 2, 2016

Moving right along...

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Literally. Words cannot express the pride and joy I feel, so I'll just share it with you this way. In addition to this amazing p...
Sunday, June 26, 2016

They say that God never gives you more than you can handle...

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...I wish he didn't trust me so much. So, all has been well in Minneapolis. Gracie has been resting and healing at the Ronald McDonald...
Friday, June 17, 2016

All is well in Minneapolis!

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Gracie has been enjoying her time out of the hospital and back at the Ronald McDonald House. She has made lots of neat crafts, visited with ...
Tuesday, June 7, 2016

Paroled!

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Gracie is in the process of being discharged from the hospital to the RMH!!! Yaaaay! Right now they are waiting for her wheelchair to arri...
3 comments:
Saturday, June 4, 2016

Out of the PICU!

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Gracie moved off the PICU unit yesterday afternoon. We are now on the 6th floor! Our room is bigger and so very nice and Gracie is enjoying ...
Thursday, June 2, 2016

PICU Princess

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Looks like we'll be staying another night here in the PICU. Gracie's pain is better controlled, but she is still not eating much so ...

Hi again from PICU

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Gracie continues to do well, although pain control is still a major challenge. We're trying to increase her oral intake so that we can p...
5 comments:
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