Some guy came down tonight to set up for a sleep study. To be honest, we are all a little on edge right now. It was weird having the guy set up medical equipment in the hotel room. They are testing her for sleep apnea and other breathing issues that are common in kids with Hurler. Oh well, we've gotta do what we've gotta do.
Things feel like they are starting to move rapidly, and as great as today was, it was ten times as frightening. Keep us in your thoughts tonight and pray for no apnea. We're going out for Italian tonight to try to ease our minds with comfort food, and maybe a glass of wine (or three).
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2 comments:
no apnea no apnea no apnea
Praying for no apnea!
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