Good appointments today...

So our day at Nemours went pretty well today. We started with a consult with the Surgery folks and that went pretty quickly. The doc gave Gracie a once-over and pronounced her fit for central line removal. They will be coordinating with the Opthamology doc who wants to do a full eye exam while Gracie is sedated. We're happy to get both procedures done with as little trauma to the Peanut as possible.

We went upstairs to clinic to see Dr. Joyce and got more good news. Gracie's rash is not GVHD. They were all gone after using the steroid cream and we all breathed a sigh of relief... although she had a new one on her face that showed up 2 days ago. Dr. Joyce took one look at it and pronounced it dry/sensitive skin rash... with the possibility of an allergy to the wipes I've used on her face. He said we could use hydrocortizone cream on it, if we stay far away from her eyes, so I'm hoping we can make it disappear pretty quickly.

We got the go ahead to restart the CSA taper and we're glad to again be on our way to ridding ourselves of yet another yucky med. :) Yay!

Aunt Hyster and her gang should be arriving tomorrow and then Uncle Mack is coming this weekend...yay! Gracie is so excited to show everyone how much hair she has been growing! She needs her first official post-transplant haircut now. Luckily, her favorite hairstylist is Aunt Hyster and so she'll be able to get one really soon. :)

We'll update again when we find out when Gracie's surgery is scheduled.

Much love.