Tuesday, April 28, 2009

Good and bad news...

So lets start with the good news... Gracie is well and has had no issues to speak of since our last update. She has been busy as a little bee and keeping us on our toes, but as far as her health is concerned, we have nothing but good days to report.

Gracie is getting braver when it comes to walking. She still prefers to crawl most of the time, but she will walk between people or furniture with little to no coaxing. She's also taking many more steps at a time lately as well. We're expecting her to just get up and start walking around on her own soon.

We are keeping the eczema pretty much under control with some steroid cream and we are slowly weaning off of the CSA, but it will be a long and cautious road.

Gracie has picked up a few more words, but "no" is still at the top of the list. However, I think it will soon be dethroned as Gracie's most frequently spoken word as "Yo Gabba Gabba" pronounced "yoyoDabbaDabba" is quickly moving up the ranks. :) She loves that show.

In other good news, we got our pictures from our Make-a-Wish portrait session, and we are so pleased. We hope to have more done as Gracie grows and as we expand our family. Here are a few of our favorites.






Now, onto the sad news... we have been following another Hurler child very closely through their transplant in Minnesota and we are sad to say that he was unable to survive the complications of transplant. Little Brinley became an angel yesterday evening after a long and hard battle. His family is devastated and could use some good thoughts and prayers. His fight for life has continually reminded me that we are so very lucky to have Gracie still with us, and to treasure every moment with her. Please lift the Craig family up in your prayers as they prepare for life without their precious Brinley.
Also, please offer a few prayers for our friend LB, as well. He is also having a few complications while recovering from transplant in MN and we are praying for a speeding recovery for him.

We are looking forward to our upcoming trip to Minneapolis in 2 weeks and we can't wait to see our friends, Rylie and Wyatt. Sadly, we will not be meeting the Craig family as we had hoped, but we do still hope to meet LB's family when we get into town. Gracie has a full week scheduled, but we are so excited to learn that Uncle Mack will be flying in for the weekend when we first get in! We haven't seen him since Christmas, so we are really excited for our visit.

Much love.

4 comments:

Anonymous said...

I am so happy Gracie is doing so well but saddened about Brinley. We are thinking ofand praying for that family. Your family too is always in our prayers.
HUGS

Rylie Suzanna said...

Oh my! The photos are great. Little Gracie is adorable with her longer locks. Can't wait to see the real thing in a couple weeks!

(And we are praying for Brinley's family, too. So sad...)

Wyatt and Family said...

Uncle Mack is coming.....woohoo!!!!!! Can't wait to see you all. Great pics by the way. We were also very sadened by the news about Brinley. We also are praying for the family.
Oh, by the way when are you flying in? We lost your e-mail, so sorry if we haven't been in touch. See you soon.

Todd, Nicole, and Wyatt

*Adriann* said...

these pictures are BEAUTIFUL!!!! I love that first one to piececs. That would make an incredible canvas!!