Just to keep everyone informed of what we'll be up to over the next few days, I'm going to post our schedule of appointments for the week.
Tomorrow (Monday 3/8) starts with an Echocardiogram, followed by a visit with our cardiologist, Dr. Braunlin. We'll go from there to the BMT Clinic for labs and a physical and then an appointment with our beloved transplant doctor, Dr. Tolar. We'll finish the day with a visit with our geneticist, Dr. Whitley.
Tuesday 3/9 - We will check in at the Outpatient Surgery floor where Gracie will have an MRI under anesthesia and also an EMG- a nerve conduction test for her hands. She'll see her opthamologist, Dr. Bothun, in the afternoon after the procedures. I'm sure that will be a fun appointment- yikes.
Wednesday 3/10 - We'll visit Dr. Laguna for Pulmonary and then have an chest Xray and an EKG. In the afternoon we'll have an Audiology exam and a visit with the ENT doc.
Thursday 3/11 - In the morning we'll be driving to Minnetonka (wherever that is) to the Gillette Children's Specialty Clinic to see Dr. Walker, the Ortho doc who concentrates on Gracie's hips, legs, and feet. We'll make our way back here to Minneapolis and finish our long day with several more appointments - Endocrine with Dr. Polgreen (Love her!), Neurology with Dr. Rothman, and we'll start the Neuropsychology testing. We will go back to Neuropsychology early Friday morning to complete their assessments, but it won't be the same without our Dr. Kendra. We will meet a new doc, Dr. Ziegler this time.
Somewhere in between all these visits, we plan to stop by Unit 5-D to see our sweet nurses, and also over to the rehab center to visit our therapists. Should be fun times. :) I'll do my best to keep everyone updated on the outcomes of all of our appointments as we go through them.
Keep us in your thoughts so that we hear nothing but good news this week.
Much love.
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2 comments:
Sounds exhausting! Thanks for keeping us informed. We are praying for really good results!
Busy week for Miss Gracie! And even though Dr.Kendra has left, Dr. Julie (Ziegler) is great too! Torie loves her! Hopefully our schedules will leave room for these 2 Hurler Girlies to meet! Love, Cheryl and Torie
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