So far, so good

Gracie has done very well so far. Monday was lab day, and thanks to the numbing cream, the blood draw was a breeze! We also got to see our BMT doc, Dr. Orchard. He was (of course) very impressed with Gracie and pronounced her "awesome!" But of course, we knew that. 

The rest of the day was filled with scans and X-rays which Gracie did with no trouble at all. At 3 pm, it was time for our big challenge... our first MRI without anesthesia. We were worried about Gracie's ability to remain motionless for such a long time, but as usual, she rocked it! She did so well, that she managed to cut the expected MRI time in half and she didn't even get to watch the full LaLaLoopsy video on the supercool video goggles she was wearing. We were beyond proud and she really impressed the MRI folks as well. :)

The best part about getting the MRI done like a big shot was that we got to cancel our Tuesday morning Surgery time and slept in! Yay! In the afternoon, we went to the Spine clinic to meet Dr. Schwender, a specialist in back issues for MPS patients. He commended Gracie on how clear her MRI pictures were and called her a rock star! He also told us that we should not need any kind of intervention with Gracie's spine as it has been stable since transplant and will likely not change as she ages. Great news!!

Today is a busy day with lots of appointments. Right now we are at the Research Center doing a Dexa scan and a few more tests for the Endocrine study we are enrolled in. Later we have our Neuropsych testing, followed by lots of appointments like Audiology, ENT, Pulmonary, Cardiology, and Ophthalmology. We'll be updating on those later. 

Please keep Gracie in your prayers... especially as we see our Cardiologist. We're hoping to hear that she has had some improvement in the size of her aortic root from last year. Fingers crossed.