So far so good- nothing to report...

Gracie continues to do well, and that leaves me with not much to report. We're slowly tapering her anti-rejection med and we'll go back to Nemours to see Dr. Joyce in another week for another check-up. We'll also be getting Gracie's eyes examined again. She hasn't had an eye exam since February... before she started ERT. I am interested to see what the doc says about her cloudy corneas. We also need to visit the audiologist again to see if Gracie can finally pass a hearing test. Thats next on the list. We need to get all of these exams done so that our therapists (Speech, PT and OT) can get a good idea of any hurdles we need to overcome.

Thats pretty much all I've got to report but I do have 2 pics to share from the BMT 40th Anniversary Celebration. They're pretty cute. Enjoy.