But thats no excuse for yet another slack in posting. Sorry all.
Gracie continues to do well and is still not showing any visible signs of RSV. We go back to Nemours on Tuesday and I am hoping and praying that we will get a negative RSV test so that we can celebrate Gracie's official germ-kickin' immune system and get back on course with getting our Speech and Physical Therapies going and getting out and about again.
She is eating and drinking very well these days. So well that her TPN just got reduced to 10 hrs a night from 12. I'm hoping that Tuesday will bring another good weight and the chance to take it down again to 8 hours! How wonderful would it be for Gracie to be tube free every night??? She's working on it and I couldn't be more proud of her.
Her hair is coming back in full force... she just gets fuzzier and fuzzier. She officially needs a haircut now. Its starting to grow over the tops of her ears. She is just so cute and fun to be around these days. She's crawling all over the place and pulling up on everything. As soon as she figures out how to keep balanced, we are going to be in trouble... she wants to walk so badly.
I've been snapping lots of cute pictures of her lately and I hope to post a few tomorrow if I can. Stay tuned.
xoxox
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Yes! We'd love to see photos of Gracie moving. Her hair sounds great! Rylie isn't quite ready for a haircut, but it won't be long. But Rylie's hair isn't very red. It's brownish with only a tad bit of red. Ah well!
We're thrilled that Gracie doesn't let a little RSV slow her down. She's one strong girl. :)
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