Gracie needs a new pair of shoes!!!

Well, my time for blogging is short these days as I have discovered. :(

It turns out that the only time I have for blogging is late at night when I'm dying for a good night's sleep in a comfy bed. Since we all know that won't happen in a SleepNumber bed no matter what, here I am with a summary post of the last few days.

So I left off with Dr. Whitley on Monday, and after leaving his office we headed downstairs to get a chest x-ray and an EKG. Gracie screamed through the x-ray, but surprisingly, she napped during the EKG which was nice.

That was Monday. Are you tired yet?

Tuesday was expected to be a lazy day for us. Gracie had an MRI and Retina Scan under anesthesia scheduled in the morning and the afternoon free. Unfortunately, that was not how it happened. We arrived at the surgery wing at 10:30 am and we were quickly shuffled back to the pre-op area. We got to our room and looked around the corner to see Rylie and her parents whose surgery had been scheduled for 7:30am. They were still waiting. This was not a good sign.
Long story short, Gracie did not go into surgery until 2:30 and did not come out for almost 3 hours!!!! We finally dragged ourselves back to the RMH around 7:30 pm with an extremely grouchy and hungry baby and 2 worn-out and stressed parents. Yuck.

Today we hit the ground running yet again with an appointment with Opthamology, Pulmonary, and an Echocardiogram. After the Echo, we went to the rehabilitation center to see Occupational Therapy and Physical Therapy specialists and do some developmental testing. She did well in OT, but the PT was a little disappointed that Gracie is not walking everywhere yet. :( We promised her that we've been working very hard on it, and she said that its really her biggest delay right now. She also recommended that Gracie get some new shoes with hard soles to help stabilize her ankles and feet so that she can gain confidence and possibly have better balance. So after leaving the Rehab Center, and a quick trip up to 5D to see our special nurses from transplant, we hopped in the car and headed to Target to get Gracie some hard shoes.



Cute, huh?

And just for fun, here is a quick shot of Wyatt, Rylie and Gracie with their Daddies- Todd, Lyle, and Jim.



The kids have all enjoyed playing together when we have a chance, and its been so nice to have good friends here.

Tomorrow brings another full day of appointments, starting with another NeuroPsych evaluation. Also somewhere in there we have cardiology, orthopedics, and BMT clinic.

So far though, everyone seems to be happy with Gracie's progress- and aside from the PT issues, Gracie is looking great. :) We hope to continue to have great appointments and more good news to share.

I'm beat, I'll try to update more tomorrow. xoxo.