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A Family Journal of Hurler Syndrome
Thursday, May 14, 2009
Well, I learned how to update the blog via text message from my cell phone. The downside is that I can only post messages that are this long! D'oh! :)
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A summary of our 1-Year Post-Transplant Check-up!
Heads up!
Its been an exhausting...
We have a favor to ask...
We're waiting to see Dr. Braunlin in Cardiology to...
Well, I learned how to update the blog via text me...
Gracie needs a new pair of shoes!!!
Waiting for our echo appointment...
Whew! I'd forgotten how packed these check-up week...
We're here!
Day +365
Our special friend Rylie...
Another reminder...
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