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A Family Journal of Hurler Syndrome
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posts by topic
- A Little Less Scientific If You Please (22)
- Administration and The Process (6)
- Back at the RMH (28)
- Chillin': Life In Minnesota (46)
- ERT Progress Reports (15)
- Home Sweet Home (44)
- In Our Words: Thoughts On the Hurler Experience (19)
- Information and Resources on MPS (4)
- Is This On the Test? Biology Cheat Sheet (4)
- Life on the Unit (27)
- More Pictures Please (44)
- Post-Transplant Status (105)
- Pre-Transplant Prep (16)
- The Treatment Horizon (57)
MPS links
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before today
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2009
(38)
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May
(13)
- A summary of our 1-Year Post-Transplant Check-up!
- Heads up!
- Its been an exhausting...
- We have a favor to ask...
- We're waiting to see Dr. Braunlin in Cardiology to...
- Well, I learned how to update the blog via text me...
- Gracie needs a new pair of shoes!!!
- Waiting for our echo appointment...
- Whew! I'd forgotten how packed these check-up week...
- We're here!
- Day +365
- Our special friend Rylie...
- Another reminder...
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▼
May
(13)
2 comments:
If you send your blog post as a picture message instead of a text message you get some added benefits:
You can add a photo (if you want).
You have a space for a title.
You get up to 1000 characters!
It's the whole reason I started my own blog! :-)
WOW! Thanks Kindall, we'll try it.
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