Day +80... in the home stretch- literally!

So, I can safely say that provided that we have no major medical events, Gracie and I will return home sometime around August 20th or soon after. Our final appointments will occur on August 18th and consists of the following: An MRI, X-ray, and Lumbar Puncture (Spinal Tap) under sedation, followed by a general checkup at the BMT clinic and then a visit with our Neurologist, Dr. Charnas.

So between now and then our prevailing dilemma is to figure out how to get home. Obviously we need to fly, however Gracie's fragile immune system makes us a little wary of flying a commercial airline. We all know how germy those planes can be! And I can't even bear to think about making Gracie wear her mask through a long flight and possibly a layover and then another flight. Ugh, poor baby. So, right now I am in the middle of contacting the many Angel and Mercy flight organizations to see if they can help us. They network with volunteer pilots with small aircraft and also large corporations with private jets and try to match them up with patients in need. We're really hoping that this will work out for us, so send out some prayers for an angel to swoop in and bring us safely home.

Gracie is still doing great and working hard trying to eat and with her physical therapy. She's definately making progress in both areas but its slow going. I am so proud of her for being such a trooper, even when she just doesn't feel like it. She is definitely an amazing little girl. So we'll just soldier on with the feeding, meds and physical activites and hopefully Gracie will continue to improve.

Much love.