of how wonderfully blessed and lucky we are to still have our Gracie with us.
I learned today that another Hurler baby in Minnesota has lost his fight and gone home to God. Little LB passed away yesterday due to complications from transplant.
I am devastated and discouraged to know how many lives MPS is still claiming, despite having the best medical care available. Its totally unfair, and I wish there were more that could be done for these precious children.
Please pray for Brinley's parents, Mandy and Trampus, and also LB's parents, Michelle and Lou, as they try to rebuild their lives again without their precious sons. God bless them all.
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3 comments:
Nicely put. We agree. It makes me want to do SOMETHING to fight MPS. Transplant is not a good option. We need more...
Thanks for this posting. We are so very blessed to have our babies with us, and we are praying for these two families that are going through such hurt.
We are also grateful to have our precious Isiah still with us. The transplant process is so harsh.
We will continue to pray for Gracie's continued progress toward healing and good health as well as all the Hurler families we have been following.
Love, Lori (Isiah's Nana)
that is so sad. I'm sorry Sarah. I know that really has impact everytime something like that happens
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