One year ago today I got my baby back. Unbelievable.
Thank you, God.
Happy Life Day, beautiful baby.
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A Family Journal of Hurler Syndrome
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2009
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May
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- A summary of our 1-Year Post-Transplant Check-up!
- Heads up!
- Its been an exhausting...
- We have a favor to ask...
- We're waiting to see Dr. Braunlin in Cardiology to...
- Well, I learned how to update the blog via text me...
- Gracie needs a new pair of shoes!!!
- Waiting for our echo appointment...
- Whew! I'd forgotten how packed these check-up week...
- We're here!
- Day +365
- Our special friend Rylie...
- Another reminder...
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May
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8 comments:
Amen.
Thank you God!
Noni & Munts
Gracie, We are so happy for you and your parents. It is truly a wonderful "gift" to have a chance at a "normal" life (well as normal as MPS can be.) Enjoy the day and we look foward to seeing you soon, walking too I hope. Tell your Mom to post some photos of your cute face when she can. See ya soon.
Whoohoo! It feels good to be one-year-post transplant, doesn't it? We are so thankful that Gracie is doing well. You guys are awesome! See you soon.
Love,
The Hays Family
Oh, and I'd love to see your slideshow from the hospital, too. Can you post it?
Aggh... no. Its apparently too long to post on youtube. :( Bummer.
wow one year!!! That is amazing!! I am sorry I have been MIA. I'm here now though and you know I love you and that precious girl! Stay strong Gracie!
Sorry I'm a bit behind in the well wishes.
Happy Life Day Gracie! I'm so happy for you and Rylie!
Lauren's is on the 18th... 2yrs. I remember all the thoughts that were going through my head when she still had no signs of engraftment on day +28... I couldn't even think about looking ahead two years! Now I wonder where the time went. God is good and I am so proud of all of our little girls! (You too Wyatt! :-) )
So glad you're already here...
Congrats Miss Gracie!
Love,E
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