Gracie is growing up!
Just last week she cut her first tooth. I totally forgot to blog about it. (yes- it seems late, but Hurler kids get teeth a lot later than most... we were expecting to wait a few more months yet!) Its so cute. I wiggle my (clean) finger in her face and say, "you gimme that toof!" and she opens wide for me to feel it. What a silly little peanut.
Also, she's crawling. Not much, but enough to get her where she wants to be... which is usually on Mommy. This is a huge step because Hurler children also have less range of motion in their joints than most other kids, so crawling (which utilizes the shoulder joints a LOT) can be problematic or even painful. So while she's not really what I would call "mobile", she is crawling short distances and it seems to not hurt her at all.
Way to go Gracie!!!!
skip to main |
skip to sidebar
[ View ]
[ Sign Guestbook ]
A Family Journal of Hurler Syndrome
sign gracie's guestbook
contributors
posts by topic
- A Little Less Scientific If You Please (22)
- Administration and The Process (6)
- Back at the RMH (28)
- Chillin': Life In Minnesota (46)
- ERT Progress Reports (15)
- Home Sweet Home (44)
- In Our Words: Thoughts On the Hurler Experience (19)
- Information and Resources on MPS (4)
- Is This On the Test? Biology Cheat Sheet (4)
- Life on the Unit (27)
- More Pictures Please (44)
- Post-Transplant Status (105)
- Pre-Transplant Prep (16)
- The Treatment Horizon (57)
6 comments:
WOW! Growing up so fast. She's amazing and continues to leave me speachless. What a brave, strong girl and a wonderfully loving Mommy.
WHOA! A tooth! That's great news. Now be careful putting your finger in the mouth. She may decide to chomp down like Rylie does! :) Thanks for the update. We're glad things are going well.
im sorry i have been MIA lately. I am slammed busy at work and have had a couple of photoshoots I had to edit!! I can't believe she is crawling!! That's so awesome. Het a pic of that tooth!
It's hard to convey exactly how huge it is that she's made so many strides. Her development sounds GREAT and I am so happy for all the good news.
Ahh a tooth, the better to eat her cheetos with!
I am amazed at her strides despite all that she has endured. She will run the world someday.
Kisses and pugs, and hugs from all of us.
xoxo
I believe new cute pictures are in order!!! We need some proof ... lol. Glad all is going well.
Post a Comment