Ok, to all of our loyal prayers out there. Thank you all so much for your continued prayers for Gracie. Keep them coming, she is doing great.
I have a special request for our personal praying posse, would you guys please lift up our new Hurler friend Bella and her parents- Elizabeth and Charles- in your prayers as well. Bella is 15 months old, lives in central Florida, and was diagnosed last month. Right now her parents are battling their insurance company to cover her ERT treatments. Please pray that aresolution comes quickly and that Bella can begin treatment. As many of you know, every moment counts with this disease and they need to get started ASAP.
If you'd like to know more about cute little Bella, she is in our MPS links list on the right hand side of this page.
Thanks all.
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2 comments:
Sarah I love how you not only ask for prayers for you own daughter but others too!! It's a sure sign of how wonderful and caring you and your family are! I am hoping Bella gets everything she needs. It's a real tragedy that insurance would even balk on those things
Ah yes, insurance woes. We know about them, and we know that miracles happen and hearts change. Let's pray that happens for Bella!
We don't have your e-mail address! We need to tell Gracie thank-you for the wonderful birthday balloons! Rylie loves them! She uses them as her punching bag. Thanks, guys!
Love,
Lyle, Jade, and Ry
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