Monday, April 28, 2008

Day -10

Today is our 3rd day of Campath, and thankfully, Gracie seems to be tolerating it much better. Her fever has gone away and she is much more playful than she was on Saturday. They started her on TPN last night which is basically all the nutrition she needs. She is still eating and nursing, which is encouraged, but due to the fact that she has had some vomiting and also they can't tell how much breastmilk she's getting, they went ahead and gave her the nutrition just for safety's sake.
This morning they drew blood at 4 am (this happens everyday) and both her hemoglobin and potassium were low so Gracie has had some red blood cells and some extra poatssium today so far. She's looking pretty good (a little pale because of the low hemolobin level) and doing well according to the doctors who visitied us about an hour ago. She seems to feel better and has been playing and flirting with all of her nurses today.
A couple of nice ladies from Speech Therapy and Physical Therapy came by this morning, and unfortunately Gracie was still drowsy from Benadryl and not interested in talking or playing much. I went ahead and asked that they start coming to visit in the afternoons when Gracie is in her prime, so I am really looking forward to seeing what all we can do to help Gracie along developmentally.

Anyway, so far so good. Gracie starts Busulfan tomorrow.

By the way, Rylie is down the hall from us and seems to be doing well. Also, Chance's mom had her new baby yesterday! Cooper Allen was born at 8:30 am yesterday morning. Congratulations Tracie and Ben!!!

4 comments:

Uncle Mack said...

So happy to hear that she is feeling better! I hope you are resting plenty. You need to keep energy and health to stay so strong and to ensure both you and Gracie feel confident as you move forward. Be good and allow yourself time to rest and sleep. :) xo and love, big bro

Reign said...

I'm glad to hear Gracie is doing better!!! I'll keep praying that it continues that way. I hope you are doing well too. Good advice from your big bro to get your rest since you need it for both of you!

Unknown said...

Hang in there my precious Gracie. We pray you will feel better soon.
Sarah and Jimmy stay strong and focus on the prize.
We love you more than we can say.
xoxoxo noni & munts

Testdriver said...

Feeling better! That's what we like to hear! Hys, I'm sorry you don't get your own bed, but I'll bet Gracie's glad she gets to snuggle with Mommy at night, tubes and all! :)

I hope you'll get a chance to go over to RMH every now and then, if just to sit in a room by yourself for a minute. Rest all you can, and take a minute to be proud of yourselves. You guys are amazing.

Veruca Salt and Van the Man say snaps to Gracie for sticking with the boobies! She knows what's good!