This is Uncle Mack. I spoke to Sarah a little while ago, and she sounded pretty good. She said Gracie seems fairly normal, playing and all. She also ate and entire thing of sweet potatoes today. :) The switched her antibiotic from Vancomycin to a less intense drug. It caused her to break out in a rash, but Sarah said they took care of it. They have also put her on a drug to control her blood pressure. Again, they say this is all within the bounds of "normal." It's just a little jarring to think about.
I just love this picture!
Tomorrow, she starts her first real chemo drug, Busulfan at 4:00 AM!!! Ugh! Please send Gracie your thoughts and prayers, as we hope these drugs do what they are supposed to do, reduce her immune system to a point that it won't attack the new cells that are introduced to her body during the transplant. Essentially, we want the drugs to weaken her so that the new cells will win the "battle" over which cells will control of her body. W are rooting for the new, healthy cells. :)
Again, Sarah sounded pretty good. She's not real happy with her room assignment - it's teeny tiny. It won't fit a bed and a crib at the same time. So far Gracie won't sleep in a crib, so Sarah sleeps with her. But, the hospital will not allow them to sleep in a bed unless it has rails... Anyway, the point is that the room is just too small for much stuff. From the sound of it (haven't seen it yet) it's about the size of 1/2 of a small hotel room. Cramped quarters for living the next 6+ weeks! Ugh... We might see if we can change that. We'll keep you posted.
Thanks again for your thoughts and prayers. Keep em coming!
1 comment:
I am glad Gracie is feeling better than she was the other day. Stinks to hear about the room situation, hopefully it will be fixed soon.
Still thinking and praying for the sweet little Gracie.
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