Hey everyone,
I hope all is well. The last couple of days have been relatively good. Gracie has been pretty tired, but when she is up she is happy and playing. She has three different rashes on three areas of her body, but the docs don't think any of them are GVHD related. She has rashes on her knees and thighs, that are strangely warm to the touch. She has a hive-looking rash on her tummy, and her skin is still a mess up near her central line insertion site. She's really itchy, so we're giving her benadryl to help with that, and the docs prescribed a strong steroid cream today. The Ativan also help keep her mind off of itching. On the bright side, she has no diaper rash...
Gracie's numbers dipped a little earlier in the week, but seem to be bouncing back. Her white blood cell count is 4.0 (up from 2.6), and her neutrophil count is 1.7 (up from 1.0). Her kidney function levels have been holding steady between .60 and .65. Her weight has held steady at 11.4 Kg for the last several days as well. That's still high compared to the 9.8 Kg upon admission, but but we're happy that it seems to be stable.
In other news, a couple of Gracie's nurses have near perfected getting her to take her meds orally. It's a little disturbing to watch them do it, but hey, it works. I suppose you can't expect her to take them voluntarily. I don't think I voluntarily took medicine when I was 11 years old, much less 11 months. So that's a big step toward getting out of the hospital. If we keep it up, she'll escape without a naso-gastral (NG) tube which will make mommy very happy.
Speaking of making mommy happy, Jimmy arrived this afternoon. Gracie was so happy to see her daddy. I know they will enjoy the next week together, and hopefully he will bring some good energy to promote "white" cell growth. Good pun, eh?
One last bit of good news, Uncle Mack has nearly reached perfection in Nintendo Wii tennis. My rating is 1895 out of 2000. That Wii is a sanity saver. Keeps us occupied while the baby is sleeping. I'm also a pro golfer, and Sarah is a pro and gold medalist bowler. :)
Hard to believe that today was Day +30!! Sometimes it feels like a week since this started, sometimes it feels like a year. Do us a favor and keep on chanting GROW! GROW! GROW!
Subscribe to:
Post Comments (Atom)
6 comments:
grow grow grow!! Girl you should get the Wii Fit. Talk about FUN!!! I am so glad Jimmy is back with you guys. Isn't it awesome to see how they react to daddy when he "comes home." Post more videos!!
Well lots of great news-Jimmy is back, no diaper rash, getting Gracie to take her meds orally. Good stuff! I continue to chant with all of you and of course pray too. Love to you all!
Sounds like things are really moving in the right direction now! That is all great news. So glad Gracie is wtih daddy now, and glad he made it out there safe.
Keep on Growing Gracie, you can do it!
Great news and yes good pun Mack...I always get a chuckle out of reading your posts. good that you manage to always to wiggle on lighter note into things. Thanks for all you hard work and so glad you are doing so well with the Wii....I need to try that thing, I am afraid I will get hooked.
Go Gracie!!
wow, I'm so glad to hear the WBC is going in the right direction - I'm so inspired by Gracie's fight to become better - she is an amazing little person! Sending great thoughts and prayers her way!
Yes GROW you precious little baby doll!!! GROW GROW GROW!!!!!!
We love you guys & you are in our daily prayers!!!
Once again, THANK YOU FOR THIS SITE!!!
It is AWESOME!
Even though we can't be there, it feels like we are just a tiny bit. Hugs to all of you!!!
Kelli, Kyle, Sierra & Konner :)
Post a Comment