Just a quick update for now. Gracie had a much better day today, so I'd expect her counts to be a little better tomorrow (hope, hope - GROW baby GROW!). She played almost all day. We had PT in the afternoon and the therapist told me that today was the best PT session Gracie has had. She was standing up pretty much on her own, and she got on her hands and knees for a minute or two, which sounds like a new thing.
I think that we were able to isolate what has been bothering Gracie so much the past several days. After some observation, she gets really upset after each time she gags or vomits, and after each time she poops. AND she is a little poop machine. every diaper has poop in it. So she is upset a lot. Clearly, she is having some stomach or other GI tract discomfort.
Turns out that her existing pain meds don't really help stomach issues, so they started her on Ativan, which is sort of like valium. The doctors hope that the drug will keep her stomach from bothering her as much. Lemme tell you... it worked! That was one happy baby after the drug kicked in. Of course, she might've been a teeny bit high, but it was just so great to see her smiling, laughing, putting stuff in her mouth. Turns out a lot of other kids take this as well.
Hopefully we'll get our first engraftment results tomorrow. Keep GROW GROW GROW in your thoughts and prayers. :)
Uncle Mack
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2 comments:
Ativan can be a wonder drug...good for grown up (at times) too...:)
i was about to say.....i've taken Ativan before (a couple years ago) and it's good stuff!!
LOL about Night time quickie. I need to get my mind out of the gutter on poor gracie's blog
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