Tomorrow is the big day. Gracie starts her first ERT treatment tomorrow AM at 8:30. It will take no less than 3 hours, and today we were briefed on what to expect. It doesn't sound all that bad actually. Some kids have a hives-like reaction, and very few have more serious reactions like like anaphylaxis (difficulty breathing). Other kids are just fine. Risk of reaction is the same for each subsequent treatment. In fact they said that many kids don't have any reactions until the third or fourth session.
They'll give her some tylenol and benadryl before starting, in order to prevent some of these things and to generally make her more comfortable (and sleepy). The staff will check her vitals every 15 minutes throughout the entire process to make sure she is doing ok. They start slow and crank it up after they see how she reacts.
So, that's what Gracie will be up to tomorrow. She begins the road to recovery, in earnest.
PS - I just saw the funniest Dairy Queen commercial. It was a valentine's day commercial with an older couple celebrating their 50th anniversary. They are sitting on a couch you'd find in my Grandma's house in the 70's, talking to the camera.
Wife: It's our 50th wedding anniversary.
Husband: WHAT?
Wife: IT'S OUR 50TH WEDDING ANNIVERSARY
Wife: Each year we celebrate by going to Dairy Queen and getting a cake
Husband: WHAT! YOU WANT ME TO KISS YOUR BROTHER, JAKE?
Wife: YES! I WANT YOU TO KISS MY BROTHER JAKE!!
Husband: ABSOLUTELY NOT! OUT OF THE QUESTION!
Wife turns to the camera and giggles...
Anyway, I thought it was so cute and it reminded me of my parents. Dad, you are almost this bad!
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3 comments:
I've seen that commercial, it's so funny!
Praying for all the best for Gracie tomorrow as she begins ERT.
it sounds like gracie is a trooper! i'll be praying extra hard today as gracie begins her ERT.
Your ERT has no doubt started by now... praying for an uneventful day.
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