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A Family Journal of Hurler Syndrome
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posts by topic
- A Little Less Scientific If You Please (22)
- Administration and The Process (6)
- Back at the RMH (28)
- Chillin': Life In Minnesota (46)
- ERT Progress Reports (15)
- Home Sweet Home (44)
- In Our Words: Thoughts On the Hurler Experience (19)
- Information and Resources on MPS (4)
- Is This On the Test? Biology Cheat Sheet (4)
- Life on the Unit (27)
- More Pictures Please (44)
- Post-Transplant Status (105)
- Pre-Transplant Prep (16)
- The Treatment Horizon (57)
MPS links
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before today
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2008
(189)
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February
(51)
- Ok... so I know
- ERT #2 - Shands at the University of Florida
- Two More Cents
- Hiccup #1- Mommy's perspective
- Hiccup #1 - Shands Drops the Ball
- So I spent some time...
- Biology Cheat Sheet: Anatomy of an Enzyme
- Immediate Next Steps
- By the way...
- Home...
- Not So Good News from Opthalmalogy
- Heading Home Today
- ERT Week One - We Made It
- Keeping Her Clean and Healthy
- First ERT Infusion Going Well
- Start ERT Tomorrow
- Back in St. Olaf
- Out of surgery and off for the day...
- Gracie's Report Card
- In Surgery
- First Anesthesia Tomorrow
- Gracie's Sleep Study
- ERT and Transplant - Our Final Answer
- Miss Cord Blood America
- Question for Susan from Jacksonville
- The Quick and Dirty Summary - 2-11-08
- Another day of Doctor stuff...
- Break It Down For Me, Brother!: ERT and HSCT
- As promised...
- New! Fun Blog Toy!
- Don't Doubt a Mother's Intuition
- Colder than a Welldigger's Ass
- Thanks for the Comments
- Somewhere in Middle America
- Where is my Lysosome?
- Ahhh... A Day Off
- Welcome to the frozen north!
- Defining Transplant "Success"
- Part II - Feb 8th, ERT or no ERT - Hanging with Dr...
- Part I - Feb 8th , A Long Day in the Hospital
- Fifteen Minutes!
- What's for Dinner!
- Summary - Conversation with Duke
- Baby It's Cold Outside
- Duke vs. University of Minnesota
- Promising News from Duke University Physicians
- Gracie's Ready to Rumble
- Choosing Your Physicians
- The Mommy Speaks...
- How to: Making initial contact - sample
- How to: Fast Track to Top Care
-
▼
February
(51)
4 comments:
Git down wif yo bad self!
Girl you're doing great! I've been following along, and am amazed at your every day strength!!! Lots of love!
WOOHOO Sarah, great job!!!
Atta girl Sarah!!
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